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Fairfield Resident to Cycle 270 Miles to End ALS

Photo Credit: Tri-State Trek on YouTube
Photo Credit: Tri-State Trek on YouTube

Cambridge, MA – This June, Eniko Mikle will join approximately 400 men and women to cycle in the 12th annual Tri-State Trek, a three day, 270-mile charity bike ride with the mission to end amyotrophic lateral sclerosis (ALS).

 

ALS, also known as Lou Gehrig’s disease, is a progressive neurodegenerative disease that leads to paralysis, and eventually death. It takes away a person’s ability to walk, move, and talk, but keeps the mind intact. There are approximately 30,000 people in the US living with ALS, and the average patient survives only two to five years following his or her diagnosis. There is no cure for the disease, and no effective treatment.

 

Mikle and the other Trek cyclists will raise awareness for ALS as well as raise funds to help accelerate the development of treatments to end the disease.

 

This will be Mikle’s first time participating in the Tri-State Trek, and he plans to ride 270 miles and all three days of the event. “I'm riding for Amy and Jeremy. A young couple with two great boys. I cannot imagine hearing the devastating news at such a young age, Amy is 38, their world came crashing down. I decided to join my friend Lynn Souza from Connect Computer, where Jeremy works, on this journey from Boston to Greenwich. A 3 day 270 mile journey to raise funds and awareness to ALS and find a cure one day soon. Please join my fundraising effort. Thank you from the bottom of my heart!”

 

All proceeds from the ALS TDI Tri-State Trek support the ALS Therapy Development Institute (ALS TDI), a nonprofit biotech based in Cambridge, MA. With 25 full-time scientists, ALS TDI is the largest full-scale laboratory devoted solely to ALS. In the past eleven years, riders and volunteers of the Tri-State Trek have raised more than $3.5 million for research taking place at ALS TDI. With this support, ALS TDI has been able to move forward projects and partnerships toward the goal of ending ALS, including those like the company’s Phase II clinical trial of Gilenya in ALS that is enrolling at four sites in the US.

 

“People living with ALS are in desperate need of treatments and a cure. By participating in the Trek, Eniko gives hope to patients and families affected by this disease by funding research into treatments to end ALS,” says Steve Perrin, CEO and Chief Scientific Officer at ALS TDI and Tri-State Trek participant.

 

The 12th annual Tri-State Trek will take place this June 27-29. To support Mikle’s efforts, please visit http://tst.als.net/Page.aspx?p=9184 . For more information on riding, volunteering, or coming out to cheer, call 617-441-7200 or visit www.TriStateTrek.com.  

 

About the Tri-State Trek

The Tri-State Trek is a three-day, 270 mile charity bike ride from Boston, MA to Greenwich, CT that raises money and awareness to end amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease. The Trek was created by and raises funding for the ALS Therapy Development Institute (ALS TDI), a nonprofit biotechnology institute in Cambridge, MA dedicated to discovering and developing effective treatments to end ALS. Since 2003, the Trek has grown from 16 cyclists to more than 400 participants in 2013 and has raised more than $3.5 million for ALS TDI.

 

About ALS Therapy Development Institute (ALS TDI)

The mission of the ALS Therapy Development Institute (ALS TDI) is to discover and develop effective treatments to end ALS as soon as possible. ALS TDI is the world’s largest independent ALS/MND drug development-focused nonprofit organization. It currently has partnerships with dozens of pharmaceutical and biotechnology companies worldwide in order to advance potential treatments into the clinic. Its lead ALS therapeutic candidate, Novartis’ (Switzerland) Gilenya (TDI-132), is in Phase 2A clinical trial for ALS. For more information, visit www.als.net.

 

Media Contact:

Mari Sullivan, Public Relations Manager, ALS TDI, 617-441-7220, msullivan@als.net

 

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Joeseph Biff April 21, 2014 at 07:15 AM
God bless Mr. Mikle and all those who are riding. Someone very close to me died from this horrible disease. One out of ten cases is hereditary, so basically it can affect anyone. Please click on one of the links and do what you can to help with research or even ride.
Whole Foods Market Fairfield April 21, 2014 at 11:52 AM
What a great story! Best of luck to Eniko!

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